Frequently Asked Questions

The UCI Consent to Contact Registry (UCI C2C) notifies persons interested in research about studies going on at UCI for which they might be eligible.

Two levels of participation are available:

1. Email only. By giving the UCI C2C your email address, you are agreeing to receive updates about new studies. You are not obligated to participate, or even respond.

2. Providing information about yourself. Enrolling at the second level involves completing an online questionnaire with information about you, like your age and some health information. With more information, you can be better matched to studies for which you might be eligible. This means that you will not get information sent to you unnecessarily –only studies matched to your interest will be sent.

To be eligible, you must be at least 18 years old.

Registrants are asked to renew their information every year. If a registrant does not renew their information, they may be deactivated.

In a survey we performed, participants told us they would be happy to be informed about as many studies as necessary to be successfully matched. Thus, we do not cap the number of times an individual registrant can receive communication about studies, except when they have enrolled in a longitudinal participation project (see next FAQ).

When a participant enrolls in a study, the registry is updated so that the registrant’s information is no longer active (they will not be contacted about new studies). This is true only for studies that are longitudinal in nature. Participation in surveys or other one-time activities will not impact registrant status.  For more information regarding our website privacy policy, click here.

The UCI C2C is voluntary, it carries no obligation to participate in studies, and you can withdraw at any time.

Registrants can sign up for the UCI C2C email list to receive information and updates, which may include brain health tips and facts. Some participants will be invited to participate in studies. New studies may have unique benefits. All studies aim to advance knowledge and understanding and progress the field toward improved care or cures.

To discuss the registry with a member of the research team, please call 949.824.9475 or Contact Us online.

Enrolling in the registry is easy. Enrolling means that you are willing to let UCI researchers contact you about new studies for which you might be eligible.  Please click here to access the sign up form. 

If you don’t have an email address, it may limit the number and/or type of studies in which you can participate. Email accounts are offered free of charge by a variety of organizations, such as Gmail or Outlook, and we recommend that you enroll after signing up for an email account. If you are unable or unwilling to use email, you can call 949.824.9475 to enroll yourself in the registry. Many recruitment campaigns using the registry, however, may be limited to those individuals with a working email.