Frequently Asked Questions

UCI is a major academic, medical, and research center. To make progress in medicine, clinical research studies need participants. To facilitate research recruitment, UCI MIND is initiating a new tool.

What is C2C?

The UCI Consent to Contact Registry (UCI C2C) notifies persons interested in research about studies going on at UCI for which they might be eligible.

What does it involve?

Two levels of participation are available:
1. Email only. By giving UCI MIND your email address, you are agreeing to receive updates about new studies. You are not obligated to participate, or even respond.
2. Providing information about yourself. Enrolling at the second level involves telling researchers more information about you, like your age and some health information. With more information, you can be better matched to studies for which you might be eligible. This means that you will not get information sent to you unnecessarily –only studies matched to your information will be sent.

Who can participate?

To be eligible, you must be at least 18 years old and have an active email address.

How long will my information be stored?

Registrants are asked to renew their information every year. If a registrant does not renew their information within 6 months of their annual renewal, they will be deactivated.

What’s the most that I will be contacted?

In a survey we performed, participants told us they would be happy to be informed about as many studies as necessary to be successfully matched. Thus, we do not cap the number of times an individual registrant can receive communication about studies, except when they have enrolled in a longitudinal participation project (see next FAQ).

What happens to my information if I enroll in a study?

When a participant enrolls in a study, the registry is updated so that the registrant’s information is no longer active (they will not be contacted about new studies). This is true only for studies that are longitudinal in nature. Participation in surveys or other one-time activities will not impact registrant status.  For more information regarding our website privacy policy, click here.

What if I change my mind?

The UCI C2C is voluntary, it carries no obligation to participate in studies, and you can withdraw at any time.

What’s in it for me?

Registrants can sign up for the UCI MIND email list to receive brain health tips and facts. Some participants will be invited to participate in studies. New studies may have unique benefits. All studies aim to advance knowledge and understanding and progress the field toward improved care or cures.

What if I have questions?

To discuss the registry with a member of the research team, please call 949-824-9475 or Contact Us online.

How do I enroll?

Enrolling in the registry is easy. Enrolling means that you are willing to let UCI researchers contact you about new studies for which you might be eligible.  Please click here to access the sign up form. 

What if I don’t have an email address?

If you don’t have an email address, it may limit the number type of studies in which you can participate. Email accounts are offered free of charge by a variety of organizations and we recommend that you enroll after signing up for an email account. If you are unable or unwilling to use email, you can call (949) 824-9475 to enroll yourself in the registry. Many recruitment campaigns using the registry, however, may be limited to those individuals with a working email.

Your information will be used only by qualified researchers at UCI, who have permission from the registry operators and the UCI Institutional Review Board. We will never share your information with insurers, pharmaceutical companies, or other entities outside of UCI.  For more information, access our Website Privacy Policy here.